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Therapeutic education for hyper mobile EDS patients: “PrEduSED©”

E. Chaleat-Valayer, M. Bonjean, M. H. Boucand, F. Siani, I. Perretant, N. Fraisse, C. Tricarico, M. N. Gaveau

Annals of Physical and Rehabilitation Medicine, 2013

104 participants

Abstract

frequently realized within the course of care of the patient in particular during the programs of functionnal restoration. An evaluation of the achievement of the educational objectives defined during the shared educational assessment was realized in six months after an educational program. Patients and methods.– Retrospective study of 104 patients with chronic back pain having participated from 2008 till 2012 in a therapeutic educational program and functionnal restoration. The patients benefited during the preinclusion to the program, a shared educational assessment. The defined objectives were revalued at six months. The patient had to define if the objectives were: – reached; – or not reached but possible; – or impossible. Results.– In six months, on 62 patients, 55% reached their goals, 35% did not reach their goals but think that it remains possible and 10% of the patients think that their objectives are impossible to reach. The most frequent objectives retained by the patients were: the better manage my pain, take back a physical activity, the better know my body, take back a professional activity. The satisfaction to the program is very good, 90% of the patients were satisfied by the program. Conclusion.– This therapeutic educational program integrated into the care allows to reach in a complete or partial way the educational objectives defined by the patients and the nursing, in an important proportion (90%).

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