Psychosocial Impact of Celiac Disease on Primary Caregivers of Children in Jordan: A Cross-Sectional Study
Abstract
Highlights What are the main findings? Caregivers of children with celiac disease in Jordan experience moderate to moderately high psychosocial burden. Younger age, lower income, and lower education were associated with higher caregiver burden. What is the implication of the main finding? Family-centered support and targeted education programs are needed to improve caregiver well-being. Enhancing the availability and accessibility of gluten-free food can reduce both the psychological and financial burden on caregivers. Abstract Background: Celiac disease (CD) is a chronic immune-mediated disorder requiring lifelong adherence to a strict gluten-free diet (GFD). Similar to chronic pediatric disorders, primary caregivers are susceptible to significant psychosocial burden, as CD management relies heavily on them. However, evidence regarding their psychological well-being in Jordan remains limited. Objective: This study aimed to investigate the psychosocial burden on Jordanian caregivers of pediatric CD patients and examine associations with clinical and sociodemographic factors. Methods: This cross-sectional study recruited Jordanian caregivers of pediatric CD patients with biopsy-confirmed diagnosis from September to December 2025, and all patients had followed a GFD for at least six months. The Arabic version of the Celiac Disease Parent/Caregiver Quality of Life Questionnaire (CDPCA-QoL) was distributed online, alongside questions on child and caregiver sociodemographic…
How strong is the evidence?
Evidence Hub reads this as a cross-sectional, done in people. Its evidence level is 4 of 5 (Low · observational). Observational designs can show an association but not prove cause.
Read the paper
Related studies
- Patient-Centered Pharmaceutical Design to Improve Acceptability of Medicines: Similarities and Differences in Paediatric and Geriatric Populations
- Evidence-based clinical practice guidelines for irritable bowel syndrome 2020
- Phase 2b Study of Pimodivir (JNJ-63623872) as Monotherapy or in Combination With Oseltamivir for Treatment of Acute Uncomplicated Seasonal Influenza A: TOPAZ Trial
- Gastrointestinal manifestations in COVID-19
- COVID-19 and Gastrointestinal Disease: Implications for the Gastroenterologist
- Persistent gut barrier damage and commensal bacterial influx following eradication of Giardia infection in mice
Go deeper in Evidence Hub
Evidence Hub adds a study data sheet (design, sample size, evidence level, key numbers), an AI summary and a chat grounded in the paper's text.