Living with osteoporosis: a qualitative descriptive study
Abstract
Osteoporosis affects patients emotionally, yet this aspect is often overlooked. This study found that fear, identity changes, and communication issues shape daily life and self-care. Trust in healthcare providers fosters positive engagement. Addressing emotional experiences can enhance patient-centred osteoporosis care and support treatment adherence.
Purpose: To explore the emotional experiences of individuals living with osteoporosis, with the aim of improving understanding of how these emotions influence self-care behaviours and treatment adherence.
Methods: In this qualitative descriptive study, we conducted in-depth semi-structured interviews with 20 participants diagnosed with osteoporosis, recruited through convenience sampling from an outpatient osteoporosis clinic in central Italy. We coded the interviews deductively and analyzed data using Mayring's qualitative content analysis framework. We used a priori thematic saturation as the criterion for stopping sampling. We reported data in accordance with the Consolidated Criteria for Reporting Qualitative Studies (COREQ) checklist.
Results: Participants (1 male, 19 females; age range 55-78 years) expressed a wide emotional spectrum associated with living with osteoporosis. Four overarching themes were identified: (1) emotional and psychological impact of the disease, (2) relationship with one's identity and body, (3) interaction with healthcare professionals, and (4) managing the disease in daily life. Negative…
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