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Migraine stigma and general knowledge of migraine: A cross-sectional European survey

Peter James Goadsby, Elena Ruiz de la Torre, Antoinette MaassenVanDenBrink, Pablo Irimia, Dimos Dimitrios Mitsikostas, Messoud Ashina, Gisela Marie Terwindt, David Hurtado et al.

Cephalalgia, 2025

6 citations

Abstract

BackgroundThe stigma associated with migraine impacts patients' quality of life, mental health and their willingness to seek treatment. The present study aimed to gain insights into the stigma from the patient's perspective and to assess migraine knowledge among people without the condition.MethodsThis cross-sectional descriptive, quantitative study used two surveys (survey 1, open April 2023 to July 2023; survey 2, September 2023 to November 2023). The surveys were distributed to local patient organisations across 26 European countries and nine countries in South and North America, Asia and Oceania.ResultsSurvey 1 received 3712 answers. Most respondents were women (3444; 92.8%), 45-54 years (1090; 29.4%) and experienced severe migraine (2047; 55.1%). Most participants viewed their migraine as disabling (2655; 71.5%) and felt that medical professionals only partially understood (2135; 57.5%). Survey 2 gathered 774 responses, with most of the participants being partners (202; 26.1%), friends (196; 25.3%) or other relatives (110; 14.2%) of individuals with migraine. The significant majority of respondents demonstrated a high understanding of migraine (573; 74.0%) and predominantly recognised migraine as disabling and impacting personal and professional life. Responders felt a high degree of stigma, more from work colleagues and medical professionals than from their social network.ConclusionsThe disabling nature of migraine, combined with the associated stigma, aggravates the…

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Evidence Hub reads this as a cross-sectional, done in people. Its evidence level is 4 of 5 (Low · observational). Observational designs can show an association but not prove cause.

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